Posts

The why of it all

This isn’t a spur of the moment decision. It’s something I’ve been considering for quite a long time now. My MS is pretty far advanced. I score over an 8 on the EDSS scale. Mostly I score myself at a 9. I spend my days in a hospital bed and occasionally a couple of hours in a chair that inflames the skin on my butt and the pain it causes lasts more than 24 hours. I live in adult diapers and have to be hoisted in a sling to have a bm. There’s no dignity left for me. I haven’t had a proper bath or shower in over a year. I gave up dental care when I could no longer stand at a sink, so probably a couple of years now. I don’t have enough strength in my hands to trim my fingernails and I can’t manoeuvre myself to trim toenails. I even lost the dexterity to brush my hair and can’t shave my legs or armpits. It’s a miserable way to exist. I’m at a point where there isn’t anything to differentiate one day from the next. Carers come in 4 times a day and that’s pretty much the entire exposu...
People need to understand that the relief of leaving this fucked up world is an acceptable option and doesn't mean anyone failed me or I them. Living a painful life is just too much sometimes but it doesn't mean I don't love the people that might miss me. The negativity I infect the ones I love with is a valid reason to remove myself from inflicting any more pain. I sincerely hope that they understand that this is as much for them as it is for me.
Mental illness is real and sometimes it MUST be understood to be fatal.

First pt 2

I feel uncomfortable and distressed all the time. My body feels swollen. No clothing feels remotely big or loose enough. My muscles are weak everywhere. I can't even sit comfortably in any way. I'm not sure when the last time was that I could lie down. Totally physically ruined....

First

I don't know what this will be. Hopefully a place to be totally honest with myself? I don't think anyone will ever read this so really this can be my cyber-confessional. I'm so tired of this life. I've been thinking for ages about what my future could hold but have mostly come to the conclusion that I'm just done. If my mental & physical health were to return today I still can't come up with what I could possibly do with more time.