The why of it all
This isn’t a spur of the moment decision. It’s something I’ve been considering for quite a long time now. My MS is pretty far advanced. I score over an 8 on the EDSS scale. Mostly I score myself at a 9. I spend my days in a hospital bed and occasionally a couple of hours in a chair that inflames the skin on my butt and the pain it causes lasts more than 24 hours. I live in adult diapers and have to be hoisted in a sling to have a bm. There’s no dignity left for me. I haven’t had a proper bath or shower in over a year. I gave up dental care when I could no longer stand at a sink, so probably a couple of years now. I don’t have enough strength in my hands to trim my fingernails and I can’t manoeuvre myself to trim toenails. I even lost the dexterity to brush my hair and can’t shave my legs or armpits. It’s a miserable way to exist. I’m at a point where there isn’t anything to differentiate one day from the next. Carers come in 4 times a day and that’s pretty much the entire exposu...